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On’i was born with Crouzon syndrome, a rare genetic condition that affects the shape of her skull and face. Growing up, other children didn’t understand her. They would run from her and sometimes even throw things at her. Today, On’i’s challenges aren’t just social, but within the healthcare system as well. She often struggles to get insurance to approve the medical supplies she needs.
Despite everything she has endured, On’i remains kind, open, and hopeful. She shared with me that she has never had a friend and deeply wants to experience that kind of connection.